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I was born with Tuberous Sclerosis,and because of it, I have...

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Question by Becky
Submitted on 1/2/2004
Related FAQ: Epilepsy FAQ
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I was born with Tuberous Sclerosis,and because of it, I have epilepsy.For years I
have been taking Dilantin.Recently,in July of'03,I began having medical complications.
I have hundreds of benign blood vessel tumors
in my liver,kidneys,stomach,abdominal wall,and two that are in my heart.I also have unexplainable pain that I have to take prescription pain medication for.And I am having abnormal periods.Anyways,recently I had a really bad episode in a grocery store.
My pain,on a level from 1 to 10, was a 10.I
couldn't move.I had to hold onto my cart for support.Well, the next thing I know, my head starts buzzing.I was able to feel the buzzing just by putting my hand on my head.Then my legs began feeling numb.And a minute later,I was in another world.I didn't pass out.I could hear people in the store.But I couldn't see.Instead of seeing what I was supposed to be seeing, I was in another place-a room-and there was no doors or windows.There was a big light,though, and it was shining down on a empty wheelchair,
and the wheelchair was facing me.Just when I was about to get upset,I was back.Back in the store.And some lady entered the aisle and gave me a peculiar expression like she thought something was strange about me.All I want to know is this:did I almost have a seizure?


Answer by Dorothy
Submitted on 1/11/2005
Rating: Not yet rated Rate this answer: Vote
Becky also for the heavy periods have them check you thyroid I went through this too and bled for 45 days. I had a thyroid problem that was causing the bleeding. With all the blood vessel problems you could have thrown a clot. Please pursue excellent medical care. Much Love Dorothy

 

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